Here are the latest publicly reported updates about Endometriosis UK based on recent coverage and the organization’s communications.
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National registry and data improvements remain a focus. A BBC report highlighted a campaign for a nationwide endometriosis registry to improve care, reduce waiting times, and provide better data, with Endometriosis UK calling for better documentation within the NHS. This aligns with ongoing advocacy efforts to inform policy and practice.[1][2]
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Parliamentary activity and policy engagement continued. Endometriosis UK reported active involvement in Parliament, including roundtables on the NHS 10-year Health Plan, engagement with the All-Party Parliamentary Group on Endometriosis, and evidence sessions with the Women and Equalities Select Committee, all aimed at shaping future policy and care pathways.[3]
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Research and patient experience updates persist. A Leeds Beckett/Endometriosis UK study, published in 2024 and summarized in 2024-2025 coverage, underscored persisting gaps in care and the need for integrated physical and mental health pathways; Endometriosis UK continues to cite patient-reported outcomes to advocate for system-level changes.[4]
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Ongoing communications from Endometriosis UK. The charity posted updates on campaigns, workplace and school support initiatives, and engagement with MPs and ministers, emphasizing improved diagnosis timelines, access to specialist advice, and the role of employer and educational settings in supporting those with the condition.[3]
If you’d like, I can pull the latest headlines from Endometriosis UK’s site and summarize any new announcements, including dates and proposed policy impacts. I can also highlight opportunities to get involved or support if you’re in the Dallas area or seeking UK-relevant information.
Sources
It’s been an exciting month, as we’ve attended numerous roundtables in Parliament, supported the All-Party-Parliamentary Group (APPG) on Endometriosis panel on endometriosis in the workplace, hosted our own roundtable on the NHS 10 Year Health Plan, and given oral evidence to the Women and Equalities Select Committee Inquiry on young people. We also met with numerous parliamentarians across all 4 nations including officials in Wales and Scotland, and with Órlaithí Flynn MLA to discuss the...
www.endometriosis-uk.orgHayley Barlow-Ford says better data would have helped her make an "informed choice" about surgery.
www.bbc.comSky News - First for Breaking News, video, headlines, analysis and top stories from business, politics, entertainment and more in the UK and worldwide.
news.sky.comThe charity-run centre in Hull will help women with the condition that can cause extreme pain.
www.bbc.co.ukWatch the latest from ITV News - The debilitating condition affects around one in 10 women, yet a diagnosis can take up to a decade.
www.itv.comThis year, our theme is ‘Endometriosis Doesn’t Wait’. Endometriosis doesn’t wait whilst you’re trying to get a diagnosis or access care. It doesn’t wait for your career. Your education. Your social life or your relationships. Our new report: *The State of Endometriosis Care in the UK* shows that the average time to receive a diagnosis is now 9 years and 4 months. For women and those assigned female at birth from communities of colour, it’s even longer at 11 years. Join us and help us demand...
www.endometriosis-uk.orgThe experience of living with endometriosis appears as frustrating and painful today as it was at the turn of the millennium, worrying new data shows.
www.leedsbeckett.ac.ukHayley Barlow-Ford says better data would have helped her make an "informed choice" about surgery.
www.bbc.co.uk